It may be nothing!

I know I have posted a ton lately about Princess G, but we have had a lot to deal with for her. I promise the other kids are doing well. I will write more about them soon. Tonight though I have to share something I have found.

I was channel surfing this evening with no luck of finding anything to keep my attention. We decided to put in a DVD. As Alan was putting in the DVD, I happened to to stop on the TLC channel. As I waited I started listening to the program. The show was called Mystery Diagnosis. The things that were being described sounded exactly like Princess G and her illness. WOW. I was stunned. I stopped and just watched. I wanted to know more about what this Mystery was. The illness that the child in the show is call CCAM (Congenital Cystic Adenomatoid Malformation). The child had a surgery to have a large cyst removed from his lungs. This then fixed his breathing problems. I was so amazed. In fact I am recording it in full at 10:00pm. First I want to note, the child on the show had the following symptoms, runny eyes, runny nose, sounding junky, very sick within a day (most respiratory illnesses take a few days), and sick every 2 weeks. I have to say I am freaking out at this point. This is Princess G to a tee. They even showed a picture of the little boy, he had this circles under his eyes just like Princess G. I went to the Internet, I needed more and NOW. Princess G has had so many tests, different kinds of tests and some of the same tests many times. I have a four inch 3-ring binder full of medical records on my little girl. One of the things they have noted is that she has something know had ground glass appearance in her lungs. They saw in a CT scan when she was three, and saw it again from a High resolution CT scan done in Denver earlier this year. All of this got me wondering if CCAM and Ground Glass Appearance in the lungs are found in the same cases. Sure enough I have found a case study that shows both and that they are related. I am going CRAZY. I have a Doctor appointment already set up for Thursday. I wish it was tomorrow. I need to talk to the Doctor about this. This is so hard to diagnose. Mostly because the symptoms are so close to Asthma, or phenomena. They say that a lot of times this can go undiagnosed and teenagers and adults can die without any warning from this. I need answers.

I have been searching and praying for answers, for a way to help or really to fix my little girl. An interesting note. Since we pulled Princess G out of school almost a month ago, Princess G has not been sick at all. After being sick so much while in school this is great news. It really makes me feel that the decision to pull her out of school, and keep her out of church was the right one. I am grateful for her being healthy for the past month, I just wish we did not have to shelter her to keep her that way. I do have to say though she is a real trooper over it. I just hope that this new information could lead to an answer for us. I will follow up soon. In the mean time we ask for all the prayers that we can get.